Search the site...

Autism Spectrum Explained
  • Home
  • Introduction to Autism
    • Characteristics
    • Common Myths >
      • Negative Narrative >
        • Autism Controversies
  • How to Interact
    • Stigma & Discrimination
    • What to Avoid
  • Advice for Parents
    • Visual Supports
    • Autism Treatments
    • Explaining Autism to Kids
    • A Mother's Story
    • My Sibling Perspective
    • Autism Explained for Kids Site
  • All Kinds of Minds
    • Culture of Autism
    • Late Diagnosis
  • More
    • How to Assess Claims
    • What Causes Autism?
    • Additional Resources
    • Site Info & Feedback >
      • About the Website
      • ASE FAQ
      • Survey
      • Contact Us
      • Make a Submission
  • Our Blog
    • On Self-Advocacy
    • Trouble with Changes
    • Smoothing Transitions
    • Autism Speaks
    • Vaccines
    • Infantilization
    • Her Autism is Worsening
    • Stimming
  • Autism Tutoring
  • Home
  • Introduction to Autism
    • Characteristics
    • Common Myths >
      • Negative Narrative >
        • Autism Controversies
  • How to Interact
    • Stigma & Discrimination
    • What to Avoid
  • Advice for Parents
    • Visual Supports
    • Autism Treatments
    • Explaining Autism to Kids
    • A Mother's Story
    • My Sibling Perspective
    • Autism Explained for Kids Site
  • All Kinds of Minds
    • Culture of Autism
    • Late Diagnosis
  • More
    • How to Assess Claims
    • What Causes Autism?
    • Additional Resources
    • Site Info & Feedback >
      • About the Website
      • ASE FAQ
      • Survey
      • Contact Us
      • Make a Submission
  • Our Blog
    • On Self-Advocacy
    • Trouble with Changes
    • Smoothing Transitions
    • Autism Speaks
    • Vaccines
    • Infantilization
    • Her Autism is Worsening
    • Stimming
  • Autism Tutoring

Supports for people on the spectrum are also Supports for Caregivers

12/14/2015

0 Comments

 
In typical me fashion, I was sitting up late last night thinking about autism, pondering over the supports we use for people on the spectrum - sticker charts, visual schedules, etc. And then it occurred to me. These are as much tools to train caregivers to interact and understand someone on the spectrum as they are tools for the intended person.
​
I thought about each support one by one, and here I'm going to take you through how they can actually help caregivers as much as caregivees...

1. Sticker charts
These have been much decried in recent years as tools for people on the spectrum, due to concerns about extrinsic vs intrinsic motivation, among others. But one thing these do that we don't think about is they remind caregivers to look for positive things to reward.

Having that sticker chart is a reminder to look for the great things a child on the spectrum does, when the most salient things for caregivers of children (either on the spectrum or off) tend to be the bad. So I love the idea of using a sticker chart for the caregiver, to remind US to give praise throughout the day.

2. Visual schedules
Predictability is SO important for reducing anxiety in a person on the spectrum. And yet, our world doesn't tend to provide that. A visual schedule is a great way of not only giving a person on the spectrum a way to see what's happening next, but it's also a great way for us as caregivers to be held to that schedule.

When you don't have a schedule written down and given to the person on the spectrum, you are liable to deviate quite a bit without warning. If you have a visual schedule, it's a reminder that you need to change that schedule (and thereby give a warning to the person on the spectrum of the change) before you change your plans.

3. Timers
Similar to a visual schedule, a timer holds both the person on the spectrum AND the caregiver to a commitment in terms of the routine and transitions.

4. The 5-point scale
The five point scale is a way of communicating a state of emotional regulation. A 1, for instance, is fully regulated, whereas a 5 is extremely unregulated.

Right after I learned about this scale, Caley called me in the middle of a panic attack. Wanting to apply what I'd learned, I explained the five point scale and asked where she fell. She said she fell at a four, and defined a four as feeling "like I want to run in the closet and hide".

Yes, the scale was intended to support Caley, but it was a tool for me as her ally to remind me to ask her how she's feeling, and then better understand how that felt to her. I had no idea before that a "4" felt THAT bad to her. This tool, too, went two ways.
​
5. Functional behavior analysis
This is a tool held up as the foundation of changing a child's behavior. Essentially you figure out what happened first, what happened next, and what function that behavior served.

Yet, it can be used as an far better tool for ourselves. It's a constant reminder that behavior is communication. If a child screams and then the adult interacting with them goes away and they stop screaming, they might be saying "I'm overwhelmed." Biting might be a way of saying "pay attention to me". These analyses teach us to look for the underlying meaning in behaviors, rather than just brushing them off.

These are just some examples of the ways that these supports run both ways, but there are many more. What tools can you think of that run both ways?

-Creigh
0 Comments

    About Creigh

    I'm a college student who grew up with my Autistic younger sister, Caley. I've got a bachelor's degree in Psychology and I'm currently studying for my Master's in Speech Language Pathology.

    Neither of those, however, have given me an understanding of autism. All of my understanding comes from learning from the many autistic people that I know. As a result, I have a very different outlook on autism than most, and a burning desire to tell the world what I've learned. This blog is one of the many areas in which I attempt to do that.


    *Note, none of these make me a professional, so advice I give is not professional advice.

    Top Posts

    On Self-Advocacy
    Difficulty with Changes 
    On Parental Guilt
    Transition Time!
    My Autism Speaks Story
    A Tale of Two Sensitivities
    Autism and Haircuts
    Cause of Autism
    Vaccines and Autism
    Happiness's Variations
    I Cannot Call Caley Cute
    The Power of Listening
    Her Autism is Worse
    On Preventing Bullying
    Autistic Parenthood
    Facing Discrimination
    Stimming's Function
    On Anxiety

    Categories

    All
    Acceptance
    Accommodations
    Awareness
    Caley's Posts
    Cause Of Autism
    Change
    Controversies
    Creigh's Updates
    Different Not Less
    Empathy
    Kindness
    Listening
    Meltdowns
    Myths
    Parenting
    Presume Competence
    Reader Q&A
    Science
    Self Advocacy
    Stigma / Discrimination
    Stimming
    Understanding
    Word Choice

    RSS Feed

    Blog Info

    Starting about in March 2014, all of these posts are originally published on Autism Spectrum Explained's Facebook page, and later reposted here for archiving purposes and easy access for ASE readers, including those who don't use Facebook. 

    Archives

    December 2015
    November 2015
    October 2015
    September 2015
    August 2015
    July 2015
    June 2015
    May 2015
    April 2015
    March 2015
    January 2015
    December 2014
    November 2014
    October 2014
    September 2014
    August 2014
    July 2014
    June 2014
    May 2014
    April 2014
    February 2014
    November 2013
    October 2013
    August 2013

Powered by Create your own unique website with customizable templates.
Photos used under Creative Commons from madmiked, Jim Larrison, Purple Sherbet Photography