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Difficulty with Changes and Need for Predictability

4/18/2015

1 Comment

 
Picture
Lately Caley’s been needing a bit more support, so I’ve been coming down every weekend I can to visit and help her. Every time I visit, we eat at the same restaurant: a Japanese sushi restaurant. Initially this was done because of sensory needs. A sushi restaurant, blessedly, is darker and quieter than most restaurants. Right now, with her higher than average stress levels, Caley has less energy that she can devote to helping her deal with sensory problems, which has eliminated most any other restaurant as possibilities.

Lately, though, we’ve been eating at the restaurant not only out of sensory needs, but also out of a need for routine and predictability. After the first three visits there, Caley said eating there became a tradition for her: a routine that she could count on to provide predictability. What’s more, she has ordered the same fish and vegetable dish each time. Today she professed that she would like to try something else, but as that would change her routine, she didn’t feel comfortable doing so. To help her, I ordered something new and let her ‘steal’ a few pieces of sushi from my plate, to eat alongside her fish and vegetable dish.

I asked Caley why she needed routine, and this was her reply. “It’s one less thing for your brain to be worried about. There’s always a lot of stuff you have to deal with. At least with routine there’s something you can control. There’s something that will be the same. And when everything else is changing, you want something to be the same.”

You heard her: routine and predictability are very important to people on the spectrum. Unfortunately, this is a changing world and we can’t always have the same routines. There are several things to do when that becomes an issue. One of these things is giving warnings in advance. Last weekend I was supposed to come visit Caley. I had planned to leave first thing in the morning to go see her, and I told her so. Unfortunately, later that night I discovered that my boyfriend was really sick and he probably had strep throat (which I, thinking I only had a cold, had been the unknowing donor of). I texted Caley and told her that, though I still planned to come visit, it was possible that I may be too unwell to go.

I continued warning her of this possibility the next day as I waited at the walk-in clinic. Lo and behold, the doctor tested me, found I had strep, and strictly warned me not to travel. (I was hard to convince, because I really wanted to go help Caley, so she had to cite the example of Jim Henson, who apparently died of strep complications, before I agreed to rest at home instead of traveling.) I told Caley, and she was understanding and said that having the warning of that possibility really helped her.

Caley is going through a lot of changes right now, which is why she needs more support and why routine wherever she can find it is more important to her than ever. For most people, these changes would be a cause for joy and relief. Today, Caley is getting her first car, a graduation present from our parents and grandparents. And in two weeks, Caley will be graduated from college with a degree in Public Health and a minor in Homeland Security and Emergency Management.

Both of these things Caley has worked very hard to achieve, getting her license and putting in three years of labor towards this degree, and we are all very proud of her. In fact, these changes are seen by many as the ultimate success. Yet, they are still just that: changes. And change can be scary for someone on the spectrum, because change means unpredictability and uncertainty. So, though Caley is happy to be getting a car and graduating, she is still simultaneously frightened of what all these changes in her life mean.

If ordering a different meal in a restaurant is difficult for her, because of change, imagine how she feels going from being a student, her role for almost the entirety of her life previously, to being graduated and looking for employment. In short, it’s terrifying. So finding little bastions of routine and predictability wherever she can is absolutely essential. And having a support system helping her transition to this change is invaluable. Hopefully, after reading this article, you understand a little better how to provide those supports to someone in your own life.

-Creigh

1 Comment
Ettina link
6/22/2016 10:34:03 am

Personally, I don't tend to get very anxious about change. Maybe a little more anxiety than typical, but not nearly as high as many others on the spectrum. But I do tend to function more poorly when I'm faced with change, and it's exactly for the reason Carly describes.
When I'm doing something routine, I don't have to think about it. It doesn't take any mental effort. So I can do a bunch of routine activities, and even throw in a couple new things, without really taxing myself at all.
But if you reposition the furniture, say, I'm suddenly devoting a bunch of mental energy to the fact that the furniture is in a different place. I'm noticing the furniture in my peripheral vision and going 'something looks different'. I'm stopping to plan out how to get around the furniture, because my habitual route is blocked. I'm trying to figure out where my stuff is because some of it was piled on that furniture, or where to put the stuff I'm carrying that I would normally put on that furniture. And so forth. So it doesn't make me anxious, but I get overloaded more easily, and I'm less able to do something challenging until I get used to the change.

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    About Creigh

    I'm a college student who grew up with my Autistic younger sister, Caley. I've got a bachelor's degree in Psychology and I'm currently studying for my Master's in Speech Language Pathology.

    Neither of those, however, have given me an understanding of autism. All of my understanding comes from learning from the many autistic people that I know. As a result, I have a very different outlook on autism than most, and a burning desire to tell the world what I've learned. This blog is one of the many areas in which I attempt to do that.


    *Note, none of these make me a professional, so advice I give is not professional advice.

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